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My son suffers from a rare disease called EOE t

My son suffers from a rare disease called EOE t

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eosinophilic esophagitis EOE in kids

a mom and sons journey through EOE

symptoms of EOE in kids

kids with EOE

a baby diagnosed with EOE

Your baby is born. You count ten fingers and ten toes. Everything's perfect. Your baby “seems” healthy. When my daughter Samantha was born in 1997, ...

Families Isolated By Rare Genetic Conditions Find New Ways To Reach Out : Shots - Health News : NPR

A Joyful Heartbreak

waiting for an EOE scope

Sandra's son in his Superman shirt

Newborn baby who looks like an 80-year-old after being born with rare

Every Parent Wants to Protect Their Child. I Never Got the Chance.

Tackling My Son's Rare Disease One Bite at a Time

Although he suffers from the rare condition Evan still an upbeat and happy child.

Brothers, Richard, 5, and Lennon McDonald, 6, have the rare condition

General Information About Eosinophilic Esophagitis

The symptoms of Eosinophilic Esophagitis are difficulty swallowing, food impaction and Heartburn.

man sitting and looking at the ocean

Sandra's son in his Superman shirt

Tandy Palmes' 13 year old son Angus has the body the same size as an

buffering

Kate's rare disease was finally diagnosed and successfully treated by Dr. Hal Hoffman. Read her remarkable story.

How Gordon Ramsay Helped My Child With Food Allergies Conquer Her 'War With Food'

She serves as the Co-founder and Executive Director for the Rare and Undiagnosed Network (RUN), a 501©3 nonprofit organization.

Heartbreak: Megan Renfroe, right, holds her little sister Katie who suffers from megalencephaly

Women with Knife and Fork

... Rare Diseases (2/28/14) to help other families with sick children & a book being written about Amylynne and Nic's historical medical journey will

A Twitter user shared a pro-abortion poster with a photo of Natalie Weaver's severely

patching testing for EOE

Girl can groove: Audrey Nethery, six, has a rare illness called Diamond Blackfan

PIc

Why I Don't Regret Throwing My Leg Brace in the Back of My Closet

Now on to Lucy

Informative cards all about Eosinophilic Esophagitis And yes, I pinterested this as soon as the

Why couldn't she walk? The doctor in the ER felt strongly that it was from her unknown autonomic neuropathy. It is not easy to watch my youngest suffer in ...

Ava continues to inspires me each and every single day to continue to move forward optimistically in our world of the unknown.

Throat-Closing Ailment EoE is a Mystery That Must Be Solved (Op-Ed

With all that said, we went out of the four walls of multiple hospitals and into the world of genetics. We started in Wisconsin with Dr. Gunter Scharer and ...

Instead of going to school, Zeng was used as a child beggar due to her

naturopath child abuse whooping cough natural

Zeng Yushan, 19 (left), has the appearance of a seven-year

Rare Disease Day 2018 Official Video

Nineteen months ago. we were blessed with the birth of our first child. I had an uneventful pregnancy with no complications. After all ultrasounds showed a ...

... make turkey nuggets by cutting up a turkey breast, rolling it in rice flour, and frying it in avocado oil. You see two pans here because our oldest son ...

Development of EoE Linked with Eczema, Asthma and Food Allergy

The newborn who looks like an 80-year-oldhttps://metro.co.uk/video/the-newborn-looks-like-80-year-old-1334579/

Richard and Lennon, pictured with brother Cameron, are both keen gymnasts despite not having

Today is the one year mark for us with the Undiagnosed Diseases Network (UDN). Our applications landed on their desk last December, 21st, 2015.

Richard and Lennon were also born without sweat glands and so can't regulate their

I do believe we gained an incredible network and community through our journey. We are forever grateful for the people we have met along the way.

Dear Mama, You Are Not a Failure

The boys were born with no teeth and later developed pointy teeth which made eating difficult

Home Remedies and Natural Treatment for Pneumonia

mom and ely3

How I Reversed my Son's Asthma

Baby laying in crib

Angus Palmes (pictured) weights just 2st and 2lbs and has a rare chromosome abnormality

Skin Prick above testing with several positive reactions. Histamine is the positive control.

Anderson Cooper with the Harger family

Although he suffers from the rare condition Evan still an upbeat and happy child.

Human Statue: Teenager's Muscles Turn To BONE Due To Rare Condition

I can tell you from personal experience, that coping with ODD is not as simple as reading about it.

Synthetic Vitamin K Shot for My Baby? No Thanks.

Prince and Mayte Garcia's son Amiir was born a month early in October 1996. He

She continues treatment at Seattle Childrens for occupational and

Constant pain: Ramesh Darji suffers from Ichthyosis, an extremely rare condition which causes his

Vanishing Bone Disease

“I ...

Sy flexes his muscles on Anderson Live

Rare And Mysterious Vomiting Illness Linked To Heavy Marijuana Use

Baby Born with Rare, Life-Threatening Skin Condition Celebrates Her First Birthday

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People pay very little attention to common eye colors, which explains why I get little to no compliments on my big brown eyes. We tend to be captivated by ...

mom and ely1

Parkinson's disease, or PD for short, is an awful and incredibly debilitating disease. It has really come to the forefront and grabbed people's attention ...

“In ...

The flow of money

Rash 5

How We're Funding Miracles for Children With My Daughter's Rare Disease

child is an old soul

Cassandra Messmer as a toddler.

7-Diseases-Superhero-2.jpg

Is Attachment Parenting Ruining Your LIfe?